Its a year ago since I had my first operation under a general and made one of the best moves ever in health terms. If you were reading my blog this time last year, I had just been discharged from hospital after the operation and it was snowing that day aswell!!
I went hospital yesterday and managed to park straight away (obviously alot of disabled people didnt want to venture out). Had my needle out, held my weight at 47kg, my chest sounded pretty clear apparently, and i didnt count my lung function as it went horribly wrong. The lung function man wasnt there and they didnt know how to set it up properly. You do a big blow out for as long and hard as you can and then breathe in....well, i went to breathe in and it stopped me so i had to quickly take it out my mouth so i could actually get some air!! Great one.
I really couldnt wait to finish iv's this time and felt really impatient. Maybe it was because its xmas, maybe because i was feeling really well, or maybe its because of the damn side effects the iv's were causing. This time I had a bellyache for about a week, going to the loo all the time and it turning green...nice!! This is because the iv's can kill certain bacteria in your stomach so i hope that sorts itself out now. I also came out in a rash around my eyes, ear and belly/chest. I have worked out that i am allergic to the alcowipes that sterilise the end of my port line. It hangs by my belly and chest so the rash is there, and because its on my hands i then touch my face and stuff so it spreads the rash there too. My right eye was the worst as it swelled up on saturday and i looked like Will Smith in Hitch when he has the reaction!!
The weekend was crap. Saturday just got worse and worse. It snowed lots and all around my road and area was gridlocked with cars so i couldnt go to see dad at the pub so i sat at home. I was watching the tv then the sky went off so i moaned at that, not that i could see it very well with one eye!! I also missed a party that night too so it wasnt a great day.
The rest of my time has been spent shopping for xmas, doing the decorations and cleaning my room. The last few days before xmas I will be finishing off the shopping, wrapping up pressies and making sure we have lots of food in :) We are off out on a pub crawl on xmas eve and then xmas day with the families.
Hope you all have a lovely day, get lots of pressies and eat lots of food. I know I will.
x Lots of love x
Wednesday, 22 December 2010
Wednesday, 15 December 2010
Blonde again!!
I have my lovely blonde hair back!! I did like being a brunette but i always missed my blonde and now i love it :) I had it done yesterday and now my energy and appetite is coming back and the cough is less and less, so i feel like the 'old' me again. Yay!!
I had a good weekend but also a sad weekend. Friday night was the JLS concert at the o2 which was great and they are brilliant live too. I took pics and had started to feel abit better by then so was able to dance. However, my best mate Steph had full blown flu (not a cold, but flu) and still isnt able to get up out of bed. She couldnt come so i took my little bro who was excited. It was nice to spend an evening with him as we are very close but I hated that Steph couldnt come. I had her crying down the phone because she couldnt go and because she felt terrible and I hate the fact that I couldnt go and see her. She always comes to see me and up the hospital when im not well so i wanted to return the favour obviously, but we both know that its not an option. If she is that ill with the flu, then god knows what would happen to me. I just text her most days and we will make up for it once shes better. Im always thinking of her though xx
Saturday was supposed to be a CF fundraising day at the pub. Because of the weather the last few weeks it had to be called off so that was abit poo but it will be rescheduled for another day so im looking forward to it as im a mascot :)
As i said earlier, Im feeling alot better now these iv's are doing their job and im counting the days until i finish them. Once i start feeling better, i start really wanting the needle out and it starts getting annoying and such a chore. I have a week to go and i hope it goes fast!!
x Lots of love x
I had a good weekend but also a sad weekend. Friday night was the JLS concert at the o2 which was great and they are brilliant live too. I took pics and had started to feel abit better by then so was able to dance. However, my best mate Steph had full blown flu (not a cold, but flu) and still isnt able to get up out of bed. She couldnt come so i took my little bro who was excited. It was nice to spend an evening with him as we are very close but I hated that Steph couldnt come. I had her crying down the phone because she couldnt go and because she felt terrible and I hate the fact that I couldnt go and see her. She always comes to see me and up the hospital when im not well so i wanted to return the favour obviously, but we both know that its not an option. If she is that ill with the flu, then god knows what would happen to me. I just text her most days and we will make up for it once shes better. Im always thinking of her though xx
Saturday was supposed to be a CF fundraising day at the pub. Because of the weather the last few weeks it had to be called off so that was abit poo but it will be rescheduled for another day so im looking forward to it as im a mascot :)
As i said earlier, Im feeling alot better now these iv's are doing their job and im counting the days until i finish them. Once i start feeling better, i start really wanting the needle out and it starts getting annoying and such a chore. I have a week to go and i hope it goes fast!!
x Lots of love x
Wednesday, 8 December 2010
Crashing back down :(
Im on iv's :(
Started them yesterday and am already feeling the shitty side effects - which is good as i know they are working but bad because i feel like a little ball of poo!! My cough got worse over the weekend so I was forced to ring Lance and organise iv's. I got the iv's delivered on tuesday then took the first dose up to the hospital with me and Lance put my needle in.
I was on my feed for 2 hours whilst watching some programme on the 50 top bad plastic surgery stories on E4 which was horrendous!! During this, I was hot and cold so was in and out the covers, switching my fan on and off and then as i sat up the sickness started and I made it to the loo before being sick...this scared mummy again, but i brushed my teeth, refilled my water and plugged my feed back in lol. I think its the iv side effects and i hope they go soon!!
I havent really done much else as im trying to rest as i have a busy weekend and want to be better as soon as rather than push myself whilst im ill and take longer to recover.
I dragged myself to the pub on sunday as we started to put the decorations up which was great. Because I coughed so much and was tired anyway, I was shattered afterwards, so went straight home to bed for a nap :) Today Scott gave me the brilliant news that he has finally decided to get his haircut after 6 months, but he cant have it yet because he cut his head open on the scaffold today at work! Div!
Will update you on weekend events which include raising money for CF and going to JLS concert!!! Im overly excited :)
x Lots of love x
Started them yesterday and am already feeling the shitty side effects - which is good as i know they are working but bad because i feel like a little ball of poo!! My cough got worse over the weekend so I was forced to ring Lance and organise iv's. I got the iv's delivered on tuesday then took the first dose up to the hospital with me and Lance put my needle in.
I was on my feed for 2 hours whilst watching some programme on the 50 top bad plastic surgery stories on E4 which was horrendous!! During this, I was hot and cold so was in and out the covers, switching my fan on and off and then as i sat up the sickness started and I made it to the loo before being sick...this scared mummy again, but i brushed my teeth, refilled my water and plugged my feed back in lol. I think its the iv side effects and i hope they go soon!!
I havent really done much else as im trying to rest as i have a busy weekend and want to be better as soon as rather than push myself whilst im ill and take longer to recover.
I dragged myself to the pub on sunday as we started to put the decorations up which was great. Because I coughed so much and was tired anyway, I was shattered afterwards, so went straight home to bed for a nap :) Today Scott gave me the brilliant news that he has finally decided to get his haircut after 6 months, but he cant have it yet because he cut his head open on the scaffold today at work! Div!
Will update you on weekend events which include raising money for CF and going to JLS concert!!! Im overly excited :)
x Lots of love x
Thursday, 2 December 2010
Snow is here!!
Stating the bloody obvious here but....its snowing!!! Yay!! It started on tuesday morning so I drove up to Scotts (he is off work now as he is on a building site, which is not good to lose money before xmas) and it was all main roads so was clear to drive on. We took the dogs to a little park near his house which hardly gets used and we made a snowlady and snowman which took ages but was great!! Scott threw snowballs at me as he cant help himself and the dogs love to eat snow so they were happy too. I was wet so changed into scotts clothes and we sat in his room watching The Walking Dead and 24.
Scott has a Lovefilm account which allows him to rent films, tv series and computer games so since then we have watched lots of things. On our holiday to York, we watched the whole series of Gavin and Stacy which was brilliant but we couldnt get into The Office, even though I love Ricky Gervais. Our new series is 24 - ive never seen it before so we started from the beginning and are so far just over halfway through series 1...each series is 24 hours long and i think there is about 8 series, so it will take awhile but its gripping!!!
Anyway back to snow stories...surprise surprise, i fell over!! I got home from Scotts and was all alone, the street was quiet (thank god) and it was dark. I got out the car and walked up the side of my mums car which is parked on the drive and stood in a big mound of snow which made me fall forward abit, so i put my other foot forward onto the step, which is very slippery and skidded and landed on my poor little knees. I sat there for a while in shock then laughed to myself and eventually got up and wobbled indoors. Scott also fell over which is even funnier!! Last night he was seeing my brother's car out the bottom of the road as he had to reverse down it and as he stepped back, he slipped, smacked the car with his bare hand as he was looking for something to grab, and fell flat on his arse. Im laughing about it even now - poor Scottings xx
On wednesday my daddy had an operation on his sinuses as they have always played him up but over the last few months he has been on constant painkillers and had headaches. I get bad sinuses because of the CF so partly understand how bad the headaches can be but luckly mine dont cause me too many problems, its only when i have a cold i notice it. Its also the first time he has had a general anesthetic and he was only a day case if everything went to plan. Everything went well and I spoke to him once when he came round and once when he was home. He feels better already and got lots of sleep whilst waiting to be discharged so went back to light work at the pub!! He loved the anesthetic and compared notes with me about it and then said he had a cottage pie for dinner before he left and he moaned about the portions lol - i understand totally ;)
Today I tidied my room from top to bottom and i took a few hours - half an hour was spent on trying to clean up the drips from my overnight feed all on the floor and side. It sets like concrete...no wonder it helps put on weight!! I wrote another list on what more i had to buy for xmas and really wanna go shopping now to finish it. Me and mummy were gonna go shopping today but the weather has stopped us going Lakeside as roads are blocked, too icy, or closed!! Something to look forward to though!
x Lots of love x
Scott has a Lovefilm account which allows him to rent films, tv series and computer games so since then we have watched lots of things. On our holiday to York, we watched the whole series of Gavin and Stacy which was brilliant but we couldnt get into The Office, even though I love Ricky Gervais. Our new series is 24 - ive never seen it before so we started from the beginning and are so far just over halfway through series 1...each series is 24 hours long and i think there is about 8 series, so it will take awhile but its gripping!!!
Anyway back to snow stories...surprise surprise, i fell over!! I got home from Scotts and was all alone, the street was quiet (thank god) and it was dark. I got out the car and walked up the side of my mums car which is parked on the drive and stood in a big mound of snow which made me fall forward abit, so i put my other foot forward onto the step, which is very slippery and skidded and landed on my poor little knees. I sat there for a while in shock then laughed to myself and eventually got up and wobbled indoors. Scott also fell over which is even funnier!! Last night he was seeing my brother's car out the bottom of the road as he had to reverse down it and as he stepped back, he slipped, smacked the car with his bare hand as he was looking for something to grab, and fell flat on his arse. Im laughing about it even now - poor Scottings xx
On wednesday my daddy had an operation on his sinuses as they have always played him up but over the last few months he has been on constant painkillers and had headaches. I get bad sinuses because of the CF so partly understand how bad the headaches can be but luckly mine dont cause me too many problems, its only when i have a cold i notice it. Its also the first time he has had a general anesthetic and he was only a day case if everything went to plan. Everything went well and I spoke to him once when he came round and once when he was home. He feels better already and got lots of sleep whilst waiting to be discharged so went back to light work at the pub!! He loved the anesthetic and compared notes with me about it and then said he had a cottage pie for dinner before he left and he moaned about the portions lol - i understand totally ;)
Today I tidied my room from top to bottom and i took a few hours - half an hour was spent on trying to clean up the drips from my overnight feed all on the floor and side. It sets like concrete...no wonder it helps put on weight!! I wrote another list on what more i had to buy for xmas and really wanna go shopping now to finish it. Me and mummy were gonna go shopping today but the weather has stopped us going Lakeside as roads are blocked, too icy, or closed!! Something to look forward to though!
x Lots of love x
Sunday, 28 November 2010
x Still feeling happy...and more shopping! x
Ive been to the cinema twice since my last post: last Sunday we saw Harry Potter which Scott got very excited about as he loves it, and this week we saw London Boulevard. They were both good films!!
In health news: Im still doing ok, my chest seems fine and my weight seems to be holding. Over the last week, I have been finding eating difficult...i am hungry but just dont know what i feel like having! I hope I find something soon as im annoying myself!! My little lungs DO NOT like this weather. Everytime I go outside, the sudden cold air and change in temperature makes me cough and sends my lungs into a little hissy fit. I still want it to snow though...it sounds like every part of the UK has snow except us in London but it is promised for this week - yay!
I also had a family outing to the doctors for a flu jab (fun times) which i didnt even feel this year, didnt get a dead arm and didnt have any side effects...i personally think i didnt feel it as i am fatter this year so have more meat on my arms lol :) I went back down the doctors for an appointment to sort out my prescription as there are things missing off of it that should be on it and it was driving me mad. He sorted it in 5 minutes so now i have a prescription with 22 different items on it. He finally did my referral letter to get me on a fitness scheme at my gym so that I can go for cheaper because I need to go for health reasons. It means i can go whenever I want so dont have to worry too much about money as its only £11 a month. Now just have to ring the gym tomorrow to say i have the referral and will hopefully be able to start it in the new year.
Ive done all my online xmas shopping now and still have a few things to be delivered but the things that I have got, ive wrapped up all neatly. Im off to the shops next week with my friend Steph to get more pressies, cards and bits and pieces. I love buying people pressies and try to put alot of thought into them. Im so excited...its only a month away now!!!
Today was a year today since my friend Anna lost her battle with CF. It seems like ages ago and I miss talking to her everyday. We used to have such a giggle online and she was an amazing person to know.
I have a busy start to the week ahead so will update once I sit down!!
x Lots of love x
In health news: Im still doing ok, my chest seems fine and my weight seems to be holding. Over the last week, I have been finding eating difficult...i am hungry but just dont know what i feel like having! I hope I find something soon as im annoying myself!! My little lungs DO NOT like this weather. Everytime I go outside, the sudden cold air and change in temperature makes me cough and sends my lungs into a little hissy fit. I still want it to snow though...it sounds like every part of the UK has snow except us in London but it is promised for this week - yay!
I also had a family outing to the doctors for a flu jab (fun times) which i didnt even feel this year, didnt get a dead arm and didnt have any side effects...i personally think i didnt feel it as i am fatter this year so have more meat on my arms lol :) I went back down the doctors for an appointment to sort out my prescription as there are things missing off of it that should be on it and it was driving me mad. He sorted it in 5 minutes so now i have a prescription with 22 different items on it. He finally did my referral letter to get me on a fitness scheme at my gym so that I can go for cheaper because I need to go for health reasons. It means i can go whenever I want so dont have to worry too much about money as its only £11 a month. Now just have to ring the gym tomorrow to say i have the referral and will hopefully be able to start it in the new year.
Ive done all my online xmas shopping now and still have a few things to be delivered but the things that I have got, ive wrapped up all neatly. Im off to the shops next week with my friend Steph to get more pressies, cards and bits and pieces. I love buying people pressies and try to put alot of thought into them. Im so excited...its only a month away now!!!
Today was a year today since my friend Anna lost her battle with CF. It seems like ages ago and I miss talking to her everyday. We used to have such a giggle online and she was an amazing person to know.
I have a busy start to the week ahead so will update once I sit down!!
x Lots of love x
Monday, 22 November 2010
x Diabetes clinic x
I had an appointment at the diabetes clinic with Jen my dietician to have a talk about what the hell my body is doing with the insulin and we still dont really know!! As far as i can make out....I definatly have CF related diabetes because my sugars are not in the 'normal' ranges of 4-7. However, when I have been testing them they havent been drastically high - i think the highest was about 10, however, its more a case of them being low. This is not because i havent been eating...for example, after a meal at the carvery with a glass of coke, 2 hours after my sugars were only 2.7, and the other night at the start of my feed my sugars were 9.6 (after a bowl of cereal and mars bar before bed) and after my feed finished at 3am, they went down to 8.5. Even CF patients without diabetes sometimes have to take insulin with feeds but mine went down after having it?? Why is my body so bloody complicated lol!!
The result of this is an appointment in January to fit a constant blood glucose monitor. This is a small tube (like a cannula/venflon) thats put into my belly (my poor little belly is taking alot of trauma this last year lol) and will stay there for about 4 days. It has a memory in it so that it can see what my blood sugar levels are doing for 24 hours a day. I really didnt want it but it is the only way we can see a true picture of whats happening and hopefully get some answers. If diabetes is not treated, it can cause issues with putting on weight and increased chest infections - both of which i am trying to improve!!
Tuesday night was brilliant. Me and Scott went for a meal with our other couple mates Sirin and Carlton. We havent seen them in a while and ended up staying out for about 4 hours in the pub/restaurant talking about old times and really laughing. I have done alot of my shopping online these last few days and have got alot more ideas for stuff and have planned a big shopping day to Lakeside with Steph in a few weeks to get pressies and bits and bobs so cant wait!!
Friday I had a bad day - just feeling tired and coughing with a sore chest. These days always worry me but i try and think that everyone has bad days so if i just allow myself to rest and sort myself out the next day. I stayed at home all day and mum had the day off so we made my high calorie muffins. The 1st attempt went wrong and i made some mixture that strongly looked like scrambled egg so mummy chucked it in the sink...the 2nd attempt went well and even though it took me 2 and half hours from start to finish, i finaly have something that resembles muffins :D
After, I was so tired so fell asleep and then loaded up on KFC to boost my calories as i didnt do well with eating that day either. Hopefully the weekend will be a good one.
x Lots of love x
The result of this is an appointment in January to fit a constant blood glucose monitor. This is a small tube (like a cannula/venflon) thats put into my belly (my poor little belly is taking alot of trauma this last year lol) and will stay there for about 4 days. It has a memory in it so that it can see what my blood sugar levels are doing for 24 hours a day. I really didnt want it but it is the only way we can see a true picture of whats happening and hopefully get some answers. If diabetes is not treated, it can cause issues with putting on weight and increased chest infections - both of which i am trying to improve!!
Tuesday night was brilliant. Me and Scott went for a meal with our other couple mates Sirin and Carlton. We havent seen them in a while and ended up staying out for about 4 hours in the pub/restaurant talking about old times and really laughing. I have done alot of my shopping online these last few days and have got alot more ideas for stuff and have planned a big shopping day to Lakeside with Steph in a few weeks to get pressies and bits and bobs so cant wait!!
Friday I had a bad day - just feeling tired and coughing with a sore chest. These days always worry me but i try and think that everyone has bad days so if i just allow myself to rest and sort myself out the next day. I stayed at home all day and mum had the day off so we made my high calorie muffins. The 1st attempt went wrong and i made some mixture that strongly looked like scrambled egg so mummy chucked it in the sink...the 2nd attempt went well and even though it took me 2 and half hours from start to finish, i finaly have something that resembles muffins :D
After, I was so tired so fell asleep and then loaded up on KFC to boost my calories as i didnt do well with eating that day either. Hopefully the weekend will be a good one.
x Lots of love x
Monday, 15 November 2010
Too much going on in my head!!!
Im surronded by lists yet again...my usual to-do list, ideas for xmas pressie list, pressies that i have brought list, what i want for xmas list....argh!!! I keep having to tell myself that i dont have to rush about for xmas as i have plenty of time, but i never know what is gonna happen in my life and i dont want to have to worry about pressies incase i do get a chest infection or anything. I know thats abit of a negative way to think but im just being realistic!! I offically started my xmas shopping on saturday evening as that was my first online purchase done - yay!! Im not going to mention what pressies i have brought people on here as i know certain people read this and i like people to be surprised :) However, any ideas as for what to buy Scott would be welcomed (just email me on facebook or something) as all he keeps going on about is a damn 3d television which is abit out of my price range thank you very much lol!!
Also sitting next to my lists is court papers. This was what greeted me when i got back from York. Im not going to go on about it as im too angry to even start speaking about it again but basically i appealled their decision to put me in the 'back to work' group as i dont need help getting work, its a case of me not being well enough to work. They are now saying that i have to go to court to take my case furthur because they believe that i am well enough to attend the meetings for the 'back to work' group. They sent me the criteria information as to who qualifys to be in the other group, and to put it bluntly, you have to be practically a vegetable! But can you tell me what the point is, of going to these meetings to help me back to work if im not well enough to go to work. They totally agree that im not well enough to work but their claim is that i am well enough to attend the meetings....please tell me what the point is in that?? Isnt that wasting mine and their time??
Tuesday i went clinic and my lung function had increased upto 24% and it WILL continue to increase!! My weight increased by 0.1kgs but we were all happy with that as i had done lots of exercise on holiday and not had too many feeds but, in the words of Tesco - every little helps :D We are still trying to sort out my diabetes as sometimes i have high blood sugars and sometimes they plummet so its too dangerous for me to have insulin at the moment until its sorted out as i dont want to end up in a diabetic coma!! Ive got to monitor my blood sugars all through-out the day until my appointment on tuesday...this results in me attempting to prick my finger about 3am when my feed finishes...great one!!
I have also now made up my mind that i strongly dislike one of my doctors even more after this clinic. When i had all the probs with my peg, she did nothing and didnt listen to me in any way, just kept throwing anti-sickness and heartburn medicine at me...and we all know now that the sickness and burn was because the tube was lodged in my bowel...anyway, i havent seen her properly since, until this clinic. She knows how nervous i am about anything to do with my peg (for obvious reasons), although i am getting better and dont check every few hours anymore to see if its still there!! She felt my stomach and was pushing over my scars, which im funny about people touching and then without warning just turned my peg all the way round really fast which pissed me off bigtime!! Then she was checking all my tablets and asked if i was still getting heartburn and if i was still on anti-sickness....erm no!!! I havent been on them since may and it wasnt fucking heartburn or reflux, it was the bastard peg tube...how many more times!!!
I also have a reciepe for muffins...not normal muffins...1000 calorie muffins!! I went out and brought all the ingredients before the weekend and then decided to make them today but realised i didnt have a muffin tin...and i still dont have a muffin tin, because i brought a yorkshire pudding tin instead. I thought they were the same but apparently not (the muffin tins are deeper) so im sulking and refusing to go out again so will now make them tomorrow afternoon instead.
God...this was a long post wasnt it!! That will teach me to leave it a week to update!
x Lots of love x
Also sitting next to my lists is court papers. This was what greeted me when i got back from York. Im not going to go on about it as im too angry to even start speaking about it again but basically i appealled their decision to put me in the 'back to work' group as i dont need help getting work, its a case of me not being well enough to work. They are now saying that i have to go to court to take my case furthur because they believe that i am well enough to attend the meetings for the 'back to work' group. They sent me the criteria information as to who qualifys to be in the other group, and to put it bluntly, you have to be practically a vegetable! But can you tell me what the point is, of going to these meetings to help me back to work if im not well enough to go to work. They totally agree that im not well enough to work but their claim is that i am well enough to attend the meetings....please tell me what the point is in that?? Isnt that wasting mine and their time??
Tuesday i went clinic and my lung function had increased upto 24% and it WILL continue to increase!! My weight increased by 0.1kgs but we were all happy with that as i had done lots of exercise on holiday and not had too many feeds but, in the words of Tesco - every little helps :D We are still trying to sort out my diabetes as sometimes i have high blood sugars and sometimes they plummet so its too dangerous for me to have insulin at the moment until its sorted out as i dont want to end up in a diabetic coma!! Ive got to monitor my blood sugars all through-out the day until my appointment on tuesday...this results in me attempting to prick my finger about 3am when my feed finishes...great one!!
I have also now made up my mind that i strongly dislike one of my doctors even more after this clinic. When i had all the probs with my peg, she did nothing and didnt listen to me in any way, just kept throwing anti-sickness and heartburn medicine at me...and we all know now that the sickness and burn was because the tube was lodged in my bowel...anyway, i havent seen her properly since, until this clinic. She knows how nervous i am about anything to do with my peg (for obvious reasons), although i am getting better and dont check every few hours anymore to see if its still there!! She felt my stomach and was pushing over my scars, which im funny about people touching and then without warning just turned my peg all the way round really fast which pissed me off bigtime!! Then she was checking all my tablets and asked if i was still getting heartburn and if i was still on anti-sickness....erm no!!! I havent been on them since may and it wasnt fucking heartburn or reflux, it was the bastard peg tube...how many more times!!!
I also have a reciepe for muffins...not normal muffins...1000 calorie muffins!! I went out and brought all the ingredients before the weekend and then decided to make them today but realised i didnt have a muffin tin...and i still dont have a muffin tin, because i brought a yorkshire pudding tin instead. I thought they were the same but apparently not (the muffin tins are deeper) so im sulking and refusing to go out again so will now make them tomorrow afternoon instead.
God...this was a long post wasnt it!! That will teach me to leave it a week to update!
x Lots of love x
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