My appointment for my 2 day assesment for going on the transplant list was for Monday morning so we went up on the sunday night again and stayed in the onsite housing. As soon as i got to my room on the ward on Monday morning, I was given lots of forms and pots to put different things in haha!! I was wheeled down to lung function, had tests on my heart and had a heart monitor attached to me which I had to keep on for 24 hours. I had shit loads of blood taken from me, had to give a sputum sample, a urine sample and then collect all my wee wee for 24 hours.
It was then lunchtime and I got to actually have a bit of a rest for a while until it was time for physio test. I had to walk for 6 minutes between 2 cones and score how tired I was after every minute. I did really well and felt ok. At 3pm, I fell asleep and then woke up a few hours later and all tests were done for that day, so me and mum just watched tv and talked until I went to bed.
Day 2 started bright and early with a bloodtest at 9am..after 2 attempts at blood they finally got it from my hand. I had to fast from midnight for the bloods and a scan of my liver and kidneys, which i was then wheeled down for at 10am. Whilst down there, they also fitted me in for chest x-ray and a CT scan of my chest. By the time I got up to the room it was lunchtime and I hadnt eaten so I was left to eat lunch. Then it was the big talk - the in's and out's of transplant. The co-ordinator came in and discussed everything about transplants and answered all of our questions. This lasted for 4 hours!! We finally got to make our way home at 6pm and got home later that night - both absolutly shattered!!
A few days after the stay, I got a phonecall from the main Dr - Dr Carby. He said everything on my tests were fine except for one thing. Whilst doing my liver and kidney scan, a little mass was picked up in my pelvis. I need to have another scan at my hospital to check out what it is. I have been told not to worry and that they arent worried at all. They believe its just a little cyst or polyp in my pelvis and that many girls have them, but because they have found it, they have to find out for definate what it is. I did a pregnancy test for them to rule that out and that was fine - thank god!! So that scan is being booked in and until then, im on the inactive list.
It was ALOT to take in and a very busy and tiring few days. It felt like it was happening to someone else and that they were talking about someone else. I just need to talk through plans with my family and pack a transplant bag before I go on the list, so that if/when I get the call, I dont have to waste time packing a bag, i just pick it up and go!!
x Lots of love x