Wednesday, 28 October 2009

x Mummy's cure for CF!! x

As i said in my last post i knew this hospital report wouldnt be the best and it wasnt!!
My weight had gone down a kg to 45.5kg and my lung function went down a little to 24% so i am not happy! I wasnt moaned at so at least that was something!! Got given some more oral antibiotics as this cough is still hanging on but getting abit better - dare i say that!! Im doing well with my insulin and blood sugar monitoring but they cant change anything yet as they need to see more results over a longer period of time. A letter was also sent to the surgeon last week in regards to me having a port fitted which i hope will be done before xmas but on the other hand i dont want it!!!!!

Woke up early this morning (for me) at 8am and have no idea why....mum heard me cough so poked her head round the door and nearly died of shock as i was wide awake waving at her lol. She came and sat on the bed and told me about her dream...r u ready....
She had a boy about 10 years old who had CF. He had a bad cough and mum met up with a nurse who said that to make him better he needs to drink a full sink bowl of washing-up liquid. Mum went upstairs to be by herself and then the nurse came up and said he had managed to drink half of it...Mum went downstairs as she wanted to be with him and he was lying down on his own...she went over and he opened his eyes, smiled and said how great he feels and he didnt have a cough anymore.
So there u have it mum has offically found a cure for CF...never mind all this research and expensive drugs...pop down to the corner shop and by some....WASHING-UP LIQUID!!! :)
If only it was that easy, ay!!

Right - im off to get ready as i am off shopping with Steph but before we begin, we must fuel up on steaks and coke :)

x Lots of love x

Sunday, 25 October 2009

x Needles, cars and my graduation x

Monday was the dreaded diabetes clinic but it went ok in the end. It took me about 5 minutes to pluck up the courage to stab myself with the needle but I did it and it wasnt too bad i suppose!! Will start of with doing insulin once a day just before my biggest meal of the day - which is normally dinner. Have to keep an eye on my blood sugars and have to do them when i wake up, before the insulin and 2 hours after starting my meal.

The feelings of diabetes is horrible though and i didnt really realise before how scary it really is. If my sugars go too low then I start to feel slightly drunk and my head is all light, and i have no energy to even get up. If they go too high, I get more breathless but i dont really notice the signs of high sugars at the moment. I have been constantly drinking, and therefore weeing, alot more and its driving me mad!! Hopefully this insulin helps with my weight and my chest infections :)

Wednesday was my graduation and we had to leave the house by 8am so i was not happy!! It rained all day but I had my family there and it was a lovely morning. I looked so little in the cap and gown and they were heavy!! The ceremony went ok and i didnt cough so was pleased. Was very tired that night and didnt do anything on thursday as I was really tired and worn out.

Over the weekend I have been so tired and having coughing fits still. Its taking me ages to do things like get ready so will ask about other antibiotics or steriods to help give me a boost as i cant have i.v's again - its too soon!! Ive got hospital tomorrow so will let you know how it goes but im not very optimistic - so im warning you all now that it may be a 'moaning' post!!!

x Lots of love x

Sunday, 18 October 2009

x Feeling better and positive x

My first week has passed being unemployed and not having to do any work but it has gone soooo quick and I havent really enjoyed it as my cold was still having its effects. I think the week 'rest' has helped though as thursday night i started to feel better and by friday morning i actually had energy to do things. I wasnt just sitting on my arse all week though - ive managed to do little bits of exercise but not as much as i hoped as my chest was bad and it was clearing without me having to do much - even walking up the stairs ended in big coughing fits but i tried my best. Im also proud to say that ive been making sure i do most of my nebs. All of this and taking the antibiotics has helped me feel better :)

This weekend has been a nice relaxing weekend i suppose. Saturday was spent at the pub watching Chelsea and eating cheese rolls with Daddy and then me and Scott had a takeaway and a night infront of the tele and today (Sunday) I have sat on my arse in my pjs, had a shower and getting ready to go cinema tonight with Scott to watch couples retreat which is a funny film so will try and hold back the coughing!!!

Am slightly nervous about next week as tomorrow i have to go hospital to start my insulin for my diabetes - argh - and on wednesday is my graduation and im too nervous!!!

x Lots of love x

Monday, 12 October 2009

x Annual review finally diagnoses diabetes x

Well diabetes has now been confirmed :( not really a big surprise but just another thing to add to my daily routine!! Have got to go and learn how to stab myself next monday but just keep an eye on my blood sugars until then....the diabetes was confirmed at annual review last thursday which was not the best day, i was knackered when i got home!!

Was not allowed to eat anything until after the tests were finished and had to be up the hospital by 9am. For those people that really know me...this is not a good day already as i am a moody minge when i am tired and hungry so not a good mix lol. Had my first blood test for my sugar levels then had to drink the horrid glucose drink and wait 2 hours. Meanwhile, I went off to x-ray and ultrasound, got my nebuliser serviced, spoke to physios and dietician and then had the second blood test which didnt go brilliantly as Lance couldnt get a vein - another reason why i need a port now. Anyway as i found out this week, the results of blood sugars should be inbetween 3-7 to be 'normal' and mine came back at 13!! Oppps. Finally got home about 12.30 and ate then went to sleep :)

Friday afternoon I went to take the dogs for a walk with Scott and he had brought them a new big ball which they loved so we played abit of football with them - well i stood there and when the ball came to me i kicked it lol - i cant bloody run!! That night was great as I went out with the girls from work for a meal but I still couldnt eat as much as i normally do because i was so clogged up in my chest that i started to feel sick if i kept eating!!

Saturday I felt like shit but still made it to my dads but did go upstairs for a sleep in the pub at one point which made me feel abit better :) but by Sunday I perked up a little and me and Scott went to a big outlet shopping centre in Ashford which was a nice day out but I did not know how big it was and it was a circle format so once you started walking round you had to carry on to get back round to where you had parked!! Came home and ate and had a sleep - knackered!!!!

Monday should have been my mate Vickys 21st so I went to visit her at the cemetery. Her family and 2 of my other CF mates were there and we all had a laugh about memories of her. It was nice seeing her family again and i really hope to keep in touch with them. Im not too worried about her up there though as she is with some of the others so she will be having her own party in the sky. Love you mate xxx

Now for the biggest news of the week - the 'secret' from my last post is that i have had to give up work at the nursery. I really didnt want it to come to this but i know that it has to be done. I keep catching everything from the kids and am not getting the chance to build myself up before i catch something and get knocked back down again :( I am going to miss it and really miss the people who work there but i will still keep in touch with them and still go on nights out with them when i can!! Now I am going to give myself a break until after xmas - i think i deserve it!!

x Lots of love x

Wednesday, 7 October 2009

x A fun, busy weekend and then another cold x

Havent updated for a while and wont do too much of a blog today as im too tired :(
Last week I went back to work for a couple of days and it was lovely to see everyone!! Didnt do much else that I can think of at this moment in time!! Oh i do have some news - I got all my results and i ended up with a 2:1 degree which im so happy about!! Although one of the results is still wrong - (a looooong story) - so I emailed my course leader and asked if he could just change it on the system and he sent an email back saying "I can not prioritse this now. Email me in a week" How frigging rude!!! My mum went mad and so did I. Ive had nothing but trouble with that uni and they have not been supportive and are still not being so complaints are being made. I graduate on the 21st October and they emailed me with the times and the ceremony starts at 10.30am but we have to be there an hour and a half before then!! God i got to get up so early lol xx

This weekend was good but tiring!! My daddys birthday was on Friday and we went up to his pub as he had a mini party..he was already partly drunk by the time we arrived but it was fun and he loved his pressies which were a few motorbike tshirts, a book and a game you put on the bar :) Saturday I recovered from the late night but then was invited to go out with some of the girls from work. Scott offered to take me and pick me up which I said ok to but only if he could use my car lol - typical!! The night was funny even if some random, very strange bloke decided to talk to us!! Sunday I was up the pub again in the afternoon to watch Chelsea beat liverpool and have a roast dinner, then it was quiz night in the evening!!

Great weekend and then woke up monday with a full blown cough and cold :( Demanded oral antibiotics from the hospital and went up to clinic on tuesday. Lung function and weight had stayed the same - 46kg and 26% - but I ended up crying as i am so fed up. Been out of hospital 2 weeks and have a cold again...i have been trying so hard since coming out of hospital and I havent had the chance to build up any strength or lung function before I get knocked back again. I think I know part of the problem and my Dr and a few other people have told me the same so I think I know what I have to do but I dont really want to...will let u know more in my next post.

x Lots of love x