Ursodeoxycholic Acid x2 (for enlarged liver problems)
Vitamin A and D x2
Ferrous Sulphate (Iron)
Colomycin mixed with sodium chloride (antibiotic)
Dornase (helps thin my phlegm)
15 - 20 minutes of PEP mask or flutter.
PEP stands for Positive Expiratory Pressure. It is a treatment to help people who have difficulty clearing sputum (phlegm) from their lungs. When you breathe out through the PEP mask with one of the resistors in place pressure builds up in your lungs. This helps to keep the airways open wide and also allows air to get behind sputum and help move it upwards.
When you breathe out through the Flutter pressure builds up in your lungs. This helps to keep the airways open wide and also allows air to get behind sputum and help move it upwards. The vibrations transmitted through the chest wall by the action of the steel ball also help to loosen sputum from the sides of the airways.
15 - 20 minutes of PEP mask or flutter
Colomycin mixed with sodium chloride
Ursodeoxycholic Acid x2
Omeperazole (helps acd reflux)
Feed: I am fed overnight through a PEG which is a tube in my stomach. I can get a extra 1500 calories with this (1000ml overnight).
Liquigen: Liquid fat (drink 60ml twice a day).
Vanilla Fortisip (1 a day).
Creon tablets: Taken whenever I eat food (they break down the fat). 5-8 tablets with main meal, 1-3 tablets with snacks.
Insulin: when needed with meals.
Blood sugar levels: tested through-out the day.
IV's: If I get a chest infection, I have a course of IV's through a portacath which is in my chest. It is normally a 2-3 week course at a time and I normally have Meropenum or Ceftazidime (3 times a day) and Tobramycin (1 a day). I usually need IV's every 2-3 months.