Monday, 14 March 2011

Transplant talks

Yes the time has come where transplant has been mentioned and appointment came through the post on friday for me to go to Harefield hospital for a day appointment to talk to and meet them. Harefield is a specialist heart and lung hospital so i couldnt be in a better place. Its on the 23rd March so not long now.

Friday I also started my iv's so it was a hard day as i was shocked at how soon the appointment was, paired with my chest being shit anyway and then i was tired as i had been coughing during the night, so not good timing. Over the weekend, I spoke to family and close people about the news and everyone took it really well and saw it in a completely positive way which changed my view slightly and has taken a BIG weight off my mind. For those that dont know much about the whole thing, I will need a double lung transplant.

I dont want to say too much about things yet as im still trying to get my head around things and dont really know what to say about the situation yet. I just have to write down questions that i want answered and take them with me. I do know a fair bit about transplant as a few of my friends have had them so i have heard bits about it. I honestly dont know how they have done so well and coped, im already abit of a wreck just thinking about it so i admire them and hope, if or when, my time comes, i can do as well as i see them doing. Truely amazing people xx

Me and mum will be going to the appointment and we will be going up the evening before and staying overnight so we dont have to leave ridiculously early in the morning and stress about getting there, as it will be a stressful enough day im sure.

My ivs are going well for the first few days ive been on them. Im abit itchy and red and have only been sick once so im doing well, just the tiredness mainly. We are decorating and sorting out the front room and kitchen this week, so i will be helping mummy with that and have lots of forms to help Scott fill in.

x Lots of love x


  1. wow you need a transplant but are apparently fit enough to work, let me know how you manage both....!! ;o)

  2. Oh Sophie... my heart goes out to you. What a wonderful day and age we live in where transplant is an option. It's incredible, really! But as wonderful as it is, it's still scary. I can't even begin to imagine the emotions you are having right now.

    I'm sorry to hear this news, but it sounds like you have a great support system! Whatever the future holds in store for you, you CAN DO IT! My thoughts are with you, cyster. :-)

  3. Haha Gemma has definately got a point there!! It must be such a scary thing to face but you've got a brilliant support network round you.

    Big hugs!

  4. Good luck with your appointment in harefield. the transplant co-ordinaters are lovely, as are the doctors. I had my transplant there 29th dec. They are the best team of people around to look after you. Good luck xx angharad